I’m burning mad.
And it’s from a total sense of helplessness and frustration.
You’ve experienced physical pain. They say that the memory of the pain of childbirth fades over time (supposedly so women will have more babies, instead of saying to their men, “NO FUCKING WAY YOU’RE PUTTING ME THROUGH THAT AGAIN!”) However, I have just the one child, and the Number One Main Reason for that is because I REMEMBER. (For me, that memory didn’t fade).
But the pain of labor/childbirth typically lasts no longer than 24 hours (23…), although I believe that’s pretty uncommon. It’s normally quite a lot less than that, right? It’s intense and terrible, but then it’s over. Whew. We lived. Time for joy (and then the emotional pain…although don’t tell Tom Cruise).
In 1999 I had a herniated disk in my back. I didn’t feel the pain so much in my back as I did down my leg, along the sciatic nerve where the bulge pressed against and then radiated the pain all the way down below the back of my knee and made my foot numb. The intensity of this pain, twenty-four hours per day, seven days per week, was like being in transition labor twenty-four hours per day, seven days per week. There was no position that provided relief. Could not stand, could not sit, could not lie down. COULD NOT FUNCTION. I would have welcomed numbness everywhere, even if it meant I couldn’t walk. How do you convince people, including doctors, that even with the absence of spurting blood, you are in agony? How do you define agony? Do you give it a “pitch”? Well, I’d say high-pitched, rather like a constant scream? And yet you wait a week for the MRI appointment, then you wait another week for the consultation with your neurologist about your MRI film, then you wait another week for the appointment for the test to determine nerve damage, another week because the neurologist is on vacation, another week for another neurologist visit, and then another week for the surgery. And in the process of all that waiting, the nerves are damaging, the brain is atrophying, and the pain is shrieking. We’re beyond the screaming phase.
I can tell you firsthand that Tylenol-With-Codeine ain’t worth shit. Neither is Vicodin. Maybe morphine, but no way will they give you that because you might get addicted. Even the codeine and Vicodin were carefully monitored and skimpy, for the same reasons. All I wanted was relief from the pain, not a high! So those who want the high ruin it for those who need pain relief? Is that what this is all about? Because one night when I was writhing on the floor in the fetal position making animal noises, JDub scooped me up and took me to the emergency room where they gave me a shot of Demerol in the butt. Not right away, though. They had to be convinced that I had an “issue” and that I had surgery scheduled before they gave me that shot. I guess too many people come in off the streets faking pain, looking for a high. What high? I just desperately needed relief! Well, that Demerol came through. For the first 2-3 hours in over two months, I felt pain-free. Is pain-free a high? Well, for me that night, it was, I guess. I was euphoric, that’s for sure. I didn’t feel like an animal sniveling from the raw, constant pain for those 2-3 hours. I could actually SMILE. For two months, my facial muscles had never gone there. For 2-3 hours, life came back to me. And then the pain seeped back in to shrieking pitch.
The surgery took care of the problem. I even remember the instant I woke up from the anesthesia and the very first thing I was conscious of was the absence of pain. Yeah, there was some “discomfort” from the incision, but it was absolutely NOTHING in comparison. Like a pin-prick. Nada. Euphoria.
I describe all of this to lead up to what my mom has been going through – for several years now. Her back problems are a lot more complex than what I experienced, but we are still talking about nerve pain as a result. Nerve pain radiates in different directions, and makes it very difficult to pin-point. As an example, the source of my herniated disk was the left lumbar in my lower back, but the pain was in my butt and thigh. My mom suffers from spinal stenosis. The spinal canal, which contains and protects the spinal cord and nerve roots, narrows and pinches the spinal cord and nerves, for her as a result of arthritis. Take what I went through and multiply it times at least 24, which is the number of vertebrae in our backs, each with a shock-absorbing disk between them. My issue was one of those disks. Her issue is every single one of those vertebrae and disks. She’s had two surgeries, each that “cleaned out” the arthritic build-up to try to open up the space so nothing would rub on those nerves. It really didn’t help. Her second surgery also involved enough metal rods inserted into her back that would for sure set off airport security alarms all over the world at the same time. (I actually saw an X-ray – that looked like something totally alien and other-worldly).
In addition to her kidney failure, which involves dialysis three times a week for four hours each time, here she is dealing with agony. She cannot lie down, and so she sleeps in a “lifter chair” at night in the living room. She can’t cook, she can’t clean -- both of which have always been her pride and joy, and probably how she has identified herself -- with well-deserved pride. She requires a walker or a wheel chair. Once again, there’s no blood being spurted, but the pain is debilitating. The Oxycodone is worthless. Vicodin is worthless (I already knew that). Absolutely nothing is helping and the pain is getting worse. Why don’t they give her Demerol? Or Morphine? And if she gets addicted, SO WHAT? This is no quality of life. In fact, it’s no life.
I also can’t believe that they can’t do more – surgically, if necessary – to help with this problem. They can replace knees and hips, why can’t they repair something like this? I’m sure it’s challenging, pin-pointing the actual source(s) of the problem, but isn’t that what all this expensive high-tech testing is supposed to do?
And why can’t they come up with pain medication that actually helps with nerve pain? And maybe isn’t addictive? The obscene costs of all these medications that we supposedly are paying to help with R&D, where are the results? FOR PAIN? And the stigma of pain medication, due to abuse – it just fries me that it affects the folks who really, really need it.
Because you know what? I remember what that pain felt like, and I knew for a fact that if it had continued on for a whole lot longer, or if I had been told: “Sorry, nothing we can do”, I’d have been outa here. I wouldn’t put my cat or dog through that.